Alright, let’s see where to start. Yesterday ended up being quite the ride. Throughout the day we had a new plan in place. Instead of doing a surgery, I was going to get some tubes put in to do both, empty my stomach and to give me nourishment straight into my small intestine. This was to happen at 7pm and then it would still put me in a position to get the tube out of my nose and be able to go home. Well, then came the news that I am also dealing with some blood clots throughout my body. One in my lung and one in my right leg were previously known, but after an ultrasound on my right arm because of a tightness and pain forming, another was found there. That meant being recommended to go on a heparin drip to try to take care of those and make sure I was safe. When the doctor that was to do my procedure heard that, he then thought it best to put the procedure on hold and do the heparin drip first.
So, with Kristine visiting as this was going on, that meant once again that plans were changing just hours before trying to take a solid step forward. I was definitely more prepared this time, but they left us alone to process things a bit. Not much for us to do, but we were chatting and just shaking our heads basically. Always has to be something. Then came in the nurse to tell us that this decision wasn’t actually done yet and there’s been a lot of back and worth between the different teams involved in my treatments here. Come to find out that once the original surgeon started hearing about all of this, he decided that we weren’t going to just keep pushing this all off. He was now armed with a full understanding of my situation, he’s consulted stomach specialists to know he wouldn’t impact future surgeries and was ready to move this forward. So now it’s 5pm and I am getting prepared for surgery to open up a new pathway from my stomach into my small intestine. So in I went, excited to be taking a real step forward. Surgery went well and next thing I know I’m waking up in the recovery room and back to my room last night.
Today was all about recovery. Really everything managed pretty well overall, except for this awfully painful stomach spasm that would just rock me and not go away easily. It’s still there actually, but getting better since I can now gain control of it much faster and get it to pass. This morning I was not and had to just sit still. I couldn’t talk or move without it flaring up. During that though I finally built up my courage to push through and have the nurse take out my nose tube. I told the nurse that I wanted him to just keep going. If I spasmed and started squirming around, he just needed to keep pulling it out and get it done. It worked well and I finally got that thing out of my nose/throat. Now, THAT was a good feeling. Maybe not the pulling out, but not having it in for sure.
Now we were moving forward, and it felt so good. Okay, a lot of pain, so that’s weird to say, but it does really feel good to be making progress. Then to add more steps, I went on a clear liquid diet today (broth, jello, and apple juice) and everything seems to be great. First time I have put anything related to food in my mouth in a week and a half. The best chicken broth I have ever had in my life. 😉 And now I may even get some pureed soups tomorrow. That may sound like sarcastic excitement but trust me when I say it is not.
All the while I have an incredible TEAM working for me behind the scenes. I just keep hearing that line from The Blues Brothers, “we’re putting the band back together….we’re on a mission from God” (https://www.youtube.com/watch?v=24hB9Phwnnw , haha) So now it looks like I may be transferred over to UCLA hospital tomorrow so we can continue to take care of the clots, etc. that need attention still, but also start working with my oncologist on the next steps for that as well. That’s not confirmed yet but is the plan.
Alright, like I said in the title, it’s been quite the ride, but I am one blessed man. I have a TEAM of women behind me that are a force, an incredible oncologist, and a group of nurses here at Huntington that have been phenomenal in helping me through this process. So we just keep looking forward, taking steps when we can, or figuring out a new way when that’s needed. I will get through this, we just need to find the best way.
As always, thank you TEAMjeff. Your support gives me the energy to fight through this battle, and a battle it is going to be. Now it’s time for me to rest and make sure I am ready for the next step coming.